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1st April 2012, 15:29 | #1 |
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Off to Aylesbury in the morning
Finally, after nearly 18 years of suffering, I'm going to see a specialist about my patulous eustachian tube disorder.
Hopefully be booked in for an op soon to try and help ease the affects of this stupid condition!
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6th April 2012, 18:01 | #2 |
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Well, after my hospital visit it seems like I may have superior semicircular canal dehiscence syndrome. Could still be patulous eustachian tube disorder, but more likely the former.
Cue another trip to have an op to remove my ear grommets, then a ct scan and then hopefully diagnosis of my problem!
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6th April 2012, 18:10 | #3 |
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what's that??
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6th April 2012, 18:19 | #4 |
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Basically I suffer with hearing my own heart beat in my ears and also autophony (my own voice amplified in my ears/head.
Patulous eustachian tube disorder is were the eustachian tubes stay open. Scds mimics this condition but is caused by 1mm to 5mm holes in the ear bones. Had this since I was 13. I'm 31 in 9 days lol
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6th April 2012, 22:30 | #5 |
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Sounds complicated!
Hope things get sorted for you.
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6th April 2012, 23:06 | #6 |
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It's more irritating tbh lol.
Thanks!
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