Testicle Pain

[FLYING BANANA]

Good to know you are getting back to old self Wes. Shame about the Nuremberg Trials.

[Dallas]

Originally Posted by FLYING BANANA

Good to know you are getting back to old self Wes. Shame about the Nuremberg Trials.

Cheers Bob.

I was at my GP's yesterday having bloods taken to check my prostate PSA level and my testosterone, the Uro had these booked months ago for when I go back and see him next month. I guess they want to check my levels to see how my body is running on just one of the boyz doing all the work. I don't seem to have any symptoms of low testosterone, but it will be interesting to know why he wants my PSA levels checked.

Again it was a lovely nurse that took my bloods, we had a laugh and a giggle, seems I haven't lost my charm, thank goodness.

[Dallas]

Hi fellas, it's been a long time since I posted about this, partly due to having my life put on hold, it's certainly been a rollercoaster ride, sadly more downs than ups, but I'm still here, this hasn't beaten me yet.

I thought I would post a little update for you all, but I don't blame you if you want to click back and run for the hills.

It has been 18 months since the unilateral orchiectomy, and sadly the surgery hasn't been a total success, I'm still having some pain on the same side, what we believe is coming from the cord, crazy isn't it.

However, considering I was diagnosed with chronic bilateral orchialgia several years ago (pain in both balls, right one being the worse); and since losing the right nut, my left remaining one has decided to become extremely painful just like the right one was, you just wouldn't believe it.

I guess the writing was on the wall, having pain in both nuts, one being more painful than the other, and taking the most painful one away, has simply allowed the remaining one to now become the most painful, crazy isn't it? I would have thought the remaining nut would have been happy to have the whole hammock to himself, but no!

So, to cut a very long story short, my life has been pretty sh*t, I'm having to fight every day to stay strong, the pain is stopping me from living, all I am doing is existing. How on earth can a guy's balls disable a man to become housebound, I cant even wear certain clothing because it sets the pain off, it's utter madness.

Anyway! I've been back and fourth to the hospital a million times these past 18 months, more nerve blocks and tests, and I'm now currently waiting for more surgery to have the remaining cord removed on the right orchi side; and I've requested (demanded) that they remove my left remaining nut; I feel this is the only option I have left to try and be pain free.

When we look at the facts, the fact that my pain only starts when I put on clothing, so by removing both of the boyz will stop the damn things from hanging; this will leave nothing for my clothing to trigger. The doctors are a bit reluctant to remove my last nut, they want to see what the cord removal does first; but they have agreed it as a last resort; this is what is keeping me going TBH.

[FLYING BANANA]

Sorry to hear you are still in pain Wes, hopefully it will be completely sorted very soon.
Banana sends her regards.

[Dallas]

Originally Posted by FLYING BANANA

Sorry to hear you are still in pain Wes, hopefully it will be completely sorted very soon.
Banana sends her regards.

Thanks Bob, we will have to catch up soon.

[Gate Keeper]

That’s a tough break for you Wes, a living nightmare and an enormous decision for you and the doctors to have to take. Do take care and keep us posted.

[Dallas]

Originally Posted by Gate Keeper

That’s a tough break for you Wes, a living nightmare and an enormous decision for you and the doctors to have to take. Do take care and keep us posted.

It certainly is Phil, everyday is torture on so many levels, the pain is one thing, but it affects everything and everyone around me, just the stress alone will finish me off.

The most positive thing from all of this Phil, is the fact that the first orchi surgery has helped, I no longer get excruciating pain from the epididymis, as it's no longer there; but instead my remaining one has become so much worse. So if we copy and paste the same for the second bad-boy, hopefully that pain will be gone too, and with both cords removed via the inguinal approach, this can hopefully improve things even further.

To make matters even worse I have larger varicoceles on the remaining one, and the pain I get is extreme, feels like a blockage/pressure feeling, the pain just cripples me, I cant even walk when it's bad.

Yes, losing both is taking a big chance, but I'm going to have to take that chance Phil, I don't have a life as it is now, so something has to happen. The docs are talking about sending me to the nuro clinic in London first, but everything is just taking such a long time, the NHS is snowed under with a backlog of patients, and because I don't have cancer, I'm at the bottom of the list.

What about you Phil, how are you keeping?

[dave lincs]

Wes let's hope they can get this sorted for you soon so you can get back to your normal self, All the best for a successful resolution

[Dallas]

Originally Posted by dave lincs

Wes let's hope they can get this sorted for you soon so you can get back to your normal self, All the best fir a successful resolution

Appreciate that Dave, thank you.

[Gate Keeper]

Originally Posted by Dallas

It certainly is Phil, everyday is torture on so many levels, the pain is one thing, but it affects everything and everyone around me, just the stress alone will finish me off. The heart failure makes me tired if I overdo things.

The most positive thing from all of this Phil, is the fact that the first orchi surgery has helped, I no longer get excruciating pain from the epididymis, as it's no longer their; but instead my remaining one has become so much worse. So if we copy and paste the same for the second bad-boy, hopefully that pain will be gone too, and with both cords removed via the inguinal approach, this can hopefully improve things even further.

To make matters even worse I have larger varicoceles on the remaining one, and the pain I get is extreme, feels like a blockage/pressure feeling, the pain just cripples me, I cant even walk when it's bad.

Yes, losing both is taking a big chance, but I'm going to have to take that chance Phil, I don't have a life as it is now, so something has to happen. The docs are talking about sending me to the nuro clinic in London first, but everything is just taking such a long time, the NHS is snowed under with a backlog of patients, and because I don't have cancer, I'm at the bottom of the list.

What about you Phil, how are you keeping?

Good morning Wes

If you have any money saved, go private.

In March this year I was diagnosed with heart failure and last week I was told my abdominal aortic aneurysm had grown into the dangerous size needing a graft repair.

The NHS scan last month in Bristol, said it had reduced in size and no action was needed. I didn’t believe the results.

I went private and 2 CT angiography scans at 2 different private hospitals confirmed the same results as being dangerous, this means if left untreated the aneurysm can blow with a fatal outcome.

My next step is to see a consultant cardiologist next Monday in London to see if I am fit for the op or not, more tests (private).

Last week, private appointment with a vascular surgeon:

If I pass the tests, I will have the op in about a month’s time at the Royal Free Hospital and it will involve blood transfusions, open surgery clamping off the heart for 20 minutes whilst the graft is attached to the inside of the aneurysm to stop it from blowing, spinal anaesthetic for 4 days, ICU. The surgeon warned us I will be on a ventilator and I will have lots of tubes, then discharge home 2 weeks later on normal pain killers.

The surgeon did my bypass 5 years ago and he is confident he can get me through the op even though there are risks. He has done 100 plus of these ops over a period of 20 years. He said the open surgery approach is the best option as he will be able to sort out any problems he sees inside, but he will have to move the intestines out to access the aorta before putting them back and he will ensure the graft does not leak, a robust repair before closing.

Unlike you Wes, I am not in any pain, but I am trying to make the best of what I have left, not panic or let it get me down. Every day I walk a mile or so to build myself up. I am not ready to throw in the towel.

It’s just as well you are under specialists. You will have to be brave, keep at it.

Wes, keep going.