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Old 6th March 2019, 14:01   #121
Dallas
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With the problems you have had anything has got to be worth a try.--
Who knows Jon?

I think I've lost all faith in humanity, these so called specialists show no compassion what's so ever. I find them to be not very nice people, if only they would take a different approach to their patients. If only they were less negative I may have received a correct diagnoses by now, but they just don't want to commit to anything.

I suppose many of us are lead to believe if we fall ill, then a simple operation will fix us, but its not quite that simple. How do doctors decide if and when a patient needs an operation or not, how much evidence do they need to give that patient the healthcare they need. We all know that doctors do not know everything, they will be the first to tell you that, I've been told enough times now.

My lady urologist told me these type of operations rarely work, the patient ends up in a worst condition. The amount of times I have been told verbally and in writing that I could end up in worst pain is getting ridiculous now, even my GP said to me a few weeks ago not to go down the surgical root if I can help it...

My experience with the NHS over the years has not be very good, watching family and friends falling ill and not getting the help they need has been all to common. Now I'm at the forefront wanting help from the NHS myself, I can now see why others have struggled, it seems there is always a fight/battle to get your foot in the door to get noticed. I really don't hold much hope on a second opinion making any difference TBH, the whole algorithm set up just doesn't work for patients like me, not unless the pain problem is waving at them saying 'Yoo-hoo! hello it is I that is the problem!...

I certainly would never recommend the urology clinic at The Royal Bournemouth Hospital to anyone, blooming hopeless bunch on dimwits.

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Old 6th March 2019, 17:43   #122
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I somewhat feel the whole situation has been dealt with so very incorrectly, the wife and I felt this strong disapproval from the moment we entered the clinicians office. It would be great to know what the clinical guidelines in situations such as mine are, I believe these must vary depending on many circumstances I guest.

During my consultation with the surgeon yesterday I could somewhat understand the problem they face in situations such as this, its obviously not easy for them to make these decisions. I suppose doctors always have their patients best interest in mind, and this is what I took away from my consultation yesterday. I cant help but think they also have an obligation to help a patient in need, this is what they have failed to do in my eyes.

But then I stumble on a very informative article such as this one HERE...
You can see how difficult it is for both the patient and the urology team.

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Old 7th March 2019, 17:37   #123
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Might it be more to do with the 'claim culture'. It cannot be easy for them, with claim companies constantly looking over their shoulders. They do what's best for the patient, based on their best idea of what is wrong, get it wrong and they face a legal claim for damages.



Maybe better to go into such interviews with a '..if I signed a disclaimer, what operation would you recommend?'.
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Old 7th March 2019, 18:39   #124
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Maybe better to go into such interviews with a '..if I signed a disclaimer, what operation would you recommend?'.
I pretty much said those exact words to the urologist Harry, I also said what if I pay and go private, and she still said no. She did say to me though that she could put me in touch with doctors that may help me, she said she would write to me with details.

She also explained that I can request for a second opinion, that she has no problem with that, that she would still stand by her clinical opinion.

Since the examination on Tuesday, my left testicle is painful. The pain also goes down my left leg and around my foot which is causing me to limp, I have never suffered pain in the left testicle or leg before, its all happened since the examination.

She was using her hands like a vice, that's what it felt like anyway. She squeezed and pressed my balls so much that the pain I felt brought tears to my eyes. She was very thorough, pulling pressing and squeezing the epididymis, and I was worried about something rising but there was no chance of that happening...

By the time she had finished I had pain in both testicles, I even had to limp slowly back to the chair. I asked her surely this amount of pain and discomfort isn't normal, but she said it was.

Why the hell doe's the human male body have a nerve that connects the testicles to each leg and feet?
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Old 7th March 2019, 21:20   #125
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The fact that I was diagnosed with trigeminal neuralgia around the same time as the testicle pain started doe's give good reason to link the two together.

There is such a thing as neuralgia of the testes, I also spoke about this to the female urologist, and she did say the problem may well be a neuropathic pain type thing. I've been on all sorts of pain meds over the years Clive, the very strong stuff such as Gabapentin and Tegretol to name a few. But the only thing that has bought me pain relief from TN is getting all my teeth extracted, so you could say I ignored what the textbooks had to say and it has pretty much paid off regarding the head and teeth pain.

Both maxillofacial, urology and the pain clinic have said the two conditions are not connected, but both conditions could be nerve related. This is obviously the reason why urology don't want to operate I guess, not unless something pops up on a scan. Once you get branded with a chronic pain condition, every symptom/condition from there on seems to get treated the same.

What puzzles me Clive, take that other Wesley guy (spelt without the 'T') who I met in the same clinic. His scan showed a blocked epididymis which they removed, I have the same symptoms as he had, but the scans say my balls are ok, apart from some small varicoceles and cysts. I believe there has to be a reason to why I am getting this pain, it could be something that is not working correctly and failing such as the epididymis, but yet its not enough to show up on a scan just yet. There's obviously no blockages, but what if the epididymis is malfunctioning, the working operation of the tissues and blood vessels could be failing.

The female urologist is writing back to my GP, she is also copying me in on the letter, it should be an interesting read. I know I'm being referred back to the pain clinic for a ilioinguinal nerve block, but I feel this is a waste of time all due to how short lived the benefit's can be, a few days to a week or two at most. If I respond well to the nerve block, this then should tell them that the pain is coming from the testicle and nowhere else, if I don't respond to the nerve block this then tells them the pain is coming from somewhere else.

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Old 8th March 2019, 14:22   #126
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My prostate appointment is set up for tomorrow, wish me luck...


The letter gave no details of what to expect so I rang to ask. They said it is just a check of my record, the US scan earlier and a chat with the specialist.


I don't have any pain or issues, its just that they found it was enlarged in the US scan, so they have referred me.
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Old 8th March 2019, 16:08   #127
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My prostate appointment is set up for tomorrow, wish me luck...


The letter gave no details of what to expect so I rang to ask. They said it is just a check of my record, the US scan earlier and a chat with the specialist.


I don't have any pain or issues, its just that they found it was enlarged in the US scan, so they have referred me.
Good luck for tomorrow Harry, hope all goes well.
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Old 9th March 2019, 15:44   #128
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Good luck for tomorrow Harry, hope all goes well.

The consultant didn't find any problem, apart from confirming it is enlarged and enlarged is normal as you get older he said. I had to fill a questionnaire in before the consultation, giving a list of possible urination issues, and to each question the answer I gave was 0 - no problems at all. The consultant has now referred me for an MRI, just to confirm his findings.
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Old 9th March 2019, 16:07   #129
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The consultant didn't find any problem, apart from confirming it is enlarged and enlarged is normal as you get older he said. I had to fill a questionnaire in before the consultation, giving a list of possible urination issues, and to each question the answer I gave was 0 - no problems at all. The consultant has now referred me for an MRI, just to confirm his findings.
Yep! All quite normal Harry for prostrate to become enlarged as we get older. When I had mine checked I was told not to do any bike riding before the appointment as this can elevate the PSA results before testing, do you know what your PSA result is?

Glad all is well.
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Old 9th March 2019, 18:12   #130
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A word of warning to you all, DONT put deep heat on your balls.
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